radiation

Steps leading up to my Breast Cancer diagnosis

Image result for footprints in the sand

I first noticed the lump in my right breast while on vacation over the summer with my family. Once we returned home, I made an appointment with my doctor.

They were certain it was NOT cancer but sent me to get a mammogram just to be sure. The mammogram came back with abnormalities. They did an ultrasound that same day on the breast.

They told me they wanted me to come back for a biopsy the next week, they kept saying they were sure it was not cancer, “I was too young, it didn’t run in my family, I don’t fit the profile, blah, blah, blah…”

I went back the next week and had the biopsy on a Wednesday and by Friday afternoon ten minutes before needing to leave to pick up my daughter at kindergarten my doctor’s office called with the horrible news…… I do indeed have breast cancer.

And let me tell you….. the world stopped….. you hear of people saying the “world just stopped”, and it really did….dead silence, I had to remind myself to breathe…

I was and still am shocked! I had my first baseline mammogram at age 35 and it was fine. I was 40 years old when I was diagnosed with breast cancer. I am now happy to say I am a seven year breast cancer survivor 🙂

To help ease your burden as you go through cancer treatment we have a lot of resources available to help with out of pocket costs for hospital tests, chemotherapy cost, chemotherapy side effects, and radiation treatment costs.

Click the compass below to check out all the FREE Resources available on CancerButterfly.com to help you through your cancer treatment:

The MRI experience

Image result for mri machine

MRI (Magnetic Resonance imaging) is a test that uses a magnetic field and pulses of radio wave energy to make pictures of organs and structures inside the body.

An MRI may be used for many reasons. It can be used to find problems such as tumors, bleeding, injury, blood vessel diseases, or infections.

The way the MRI was explained to me is that is a very sensitive mammogram that will be looking at all the cell tissue in both breasts and in the chest walls.

You may be given a gown to wear and will need to remove all metal objects (such as hearing aids, dentures, jewelry, watches, and hair clips).

You need to lie very still inside the MRI magnet, so you may need medicine to help you relax if you become nervous in confined spaces if you are claustrophobic.

Inside the scanner you will hear a fan and feel air moving. You may also hear noises as the MRI scans are taken. You may be given earplugs or earphones to wear to reduce the noise.

The MRI test usually takes 30-60 minutes.

I am claustrophobic so I can’t say the MRI was a fun experience for me, but I survived and you will too. My MRI test took 45 mins and during the test I just kept trying to redirect my mind to other things and not focus on where I was.

Click here to check out all the FREE Resources available on CancerButterfly.com to help you through your cancer treatment

Save money on out of pocket radiation treatment copays

As you go through several weeks of radiation during your cancer treatment you will accumulate a lot of various individual bills. I had 7 weeks of daily radiation and it seems like the radiation department billed my insurance every few days.

The costs of radiation can REALLY add up! Usually your health insurance company will have negotiated the rates on these services with the radiation department, but you may still have quite a bit to pay out of pocket on your co-pays.

The amount I owed the radiation department for my out of pocket co-pay cost for all my radiation expenses was $1,448.89.

Thankfully, I learned how to apply for a discount on these costs and luckily was able to receive a 57% discount off of that amount, so then I only owed $619.43!

When you also have out of pocket co-pays and deductibles to pay for chemotherapy, MRI, mammograms, Pet scans, blood work, surgery, etc., all the out of pocket costs can really start to add up! So anywhere you can save money helps a lot! Thankfully, there is financial help for cancer patients!

There is financial assistance for cancer patients available and grants for cancer patients to help offset chemotherapy cost and other out of pocket copays and deductibles. I am a breast cancer survivor and I can show you how you can apply for discounts on YOUR cancer treatment related radiation costs, hospital bill co-pays, and chemotherapy treatment co-pays that will save you MONEY!

History of the Butterfly symbol

Butterflies are deep and powerful representations of life. Many cultures associate the butterfly with our souls. The Christian religion sees the butterfly as a symbol of resurrection. Around the world, people view the butterfly as representing endurance, change, hope, and life.

Butterflies symbolize life struggles that people have endured to emerge as a better person.

Imagine your entire physical being changing to such an extreme that you are unrecognizable at the end of the transformation. Keep in mind, this change takes place in a short span of about a month (that’s the length of the butterfly life cycle). This is the deepest symbolic lesson of the butterfly. She asks us to accept the changes in our lives as casually as she does. The butterfly unquestioningly embraces the changes of her environment and her body. This unwavering acceptance of her metamorphosis is also symbolic of FAITH. Here the butterfly requests us to KEEP OUR FAITH as we move toward these changes throughout our lives. She understands that our worrying, frustration, and anger are useless against the constant changes of nature – she asks us to recognize the same.

Christianity believes the butterfly to be a symbol for the soul. We are all on a long journey of the soul through our lives. On this journey we encounter endless curves, swerves, and up-hill roads that cause us to emerge into finer beings. At our soul-journey’s end we are inevitably changed – not at all the same as when we started on our road. Our mission is to make our way in faith, accept the change that comes, and emerge from our transitions as gracefully as the butterfly.

To Native Americans the meaning of the Butterfly symbol signifies transformation. The butterfly is also believed to be a messenger from the spirit world. The message the butterfly brings depends on their color. A black butterfly indicates bad news or illness, yellow brings hope and guidance, brown signifies important news, red signifies an important event and white signifies good luck. A butterfly who lands on your shoulder brings you comfort……..may a butterfly land on your shoulder soon.

As you go through your cancer treatment may you be reminded of the butterfly and may she help bring you peace as she flies past 🙂

To help ease your burden as you go through cancer treatment we have a lot of resources available to help with chemotherapy cost, chemotherapy side effects, and radiation treatment costs. Click the compass below to check out all the FREE Resources available:

Don’t open the oven door with your wig on!

The biggest tip I can give you in the “wig” department is….. “don’t open the oven door with your wig on!” Both of the wigs I purchased were synthetic. I had no idea that synthetic wigs are HEAT SENSITIVE and I was just going about my business pulling dinner out of the oven and then I noticed when I walked past a mirror that my bangs were standing on end! Never to look the same again! The heat from the oven scorched my bangs 🙁 So then, I was on to wig number two.

If you are going through cancer treatment and chemotherapy is part of your medical treatment, losing your hair may be part of the deal as one of the chemotherapy side effects of some of the chemotherapy drugs. Keep in mind it is temporary and the chemotherapy hair loss, eyebrow hair loss and eyelash loss will grow back rather quickly once chemotherapy treatment is complete.

There are two main types of wigs:

Synthetic Hair Wig – generally less expensive than real human hair. You CAN NOT use hot styling tools on a synthetic wig unless it is a heat safe version. There is no styling necessary for synthetic wigs, since they come already styled. When wearing a synthetic wig be very careful to stay away from BBQ grills, ovens, stoves, and fireplaces!

Real Human Hair Wig – generally more expensive than synthetic wigs and has a higher quality texture of hair. This type of wig will allow you to be able to change the hairstyle and use hot styling tools on it.

It is recommended that you wash your wig after wearing it every 8-12 times. Don’t brush your wig when it is wet. The fibers in wigs are fragile and should only be brushed with a wig brush and only when the wig is dry. There is special wig shampoo that you can purchase at any wig shop.

The bangs on wigs are purposely left long so that each person can have them trimmed how they would like, since some people wear their bangs longer than others. After you purchase your wig you can take it to a hairdresser that has experience in cutting wigs and have the bangs trimmed how you would like. I also put hair clips in my wigs to make them look more like how I actually wear my hair.

Save money on out of pocket Hospital bill co-pays

As you go through cancer treatment you will accumulate a lot of various individual bills for hospital services. These services may include lab work, MRI, PET scan, echocardiogram, ultrasounds, X-rays, Mammograms, biopsies, genetic tests, surgery, and any other large test performed at the hospital.

The costs of all these tests can REALLY add up! Usually your health insurance company will have negotiated the rates on these services with your hospital, but you may still have quite a bit to pay out of pocket on your co-pays.

The amount I owed the hospital for my out of pocket co-pay cost for all my breast cancer related hospital expenses was $1,594.88. Thankfully, I learned how to apply for a discount on these costs and luckily was able to receive a 54% discount off of that amount, so then I only owed $726.22!

When you also have out of pocket co-pays and deductibles to pay for chemotherapy and radiation treatment, all the out of pocket costs can really start to add up! So anywhere you can save money helps a lot! Thankfully, there is financial help for cancer patients!

How to save money on chemotherapy treatment

Chemotherapy treatment can be VERY expensive depending on what type of insurance you have and how much your health insurance is contracted to cover of your chemotherapy treatment.

Chemotherapy grants and drug co-pay programs can help! Chemotherapy grants and drug co-payment programs have specific time deadlines and depending on the program may only go retro for 30-360 days from your “approved” date, so it is VERY important to apply for these right away.

The co-payment programs are available according to the type of cancer you have (example: breast cancer, colon cancer, thyroid cancer, etc.) and are also available according to the type of chemotherapy cancer treatment drugs you are receiving for your treatment.

The following are all drugs I received as part of my breast cancer treatment: Evista (hormone blocker), Emend (very expensive anti-nausea drug), Anzemet (chemo drug), Adriamycin (chemo drug), Cytoxan (chemo drug), Taxotere (very expensive chemo drug), Neulasta Injection (to ward off infection, very expensive!).

Actual cost for above chemo/drug expenses: $42,690.19

Contracted amount my insurance paid: $3,489.70

My “out of pocket” cost: $4,402.74

Amount I saved on my “out of pocket” cost by applying for cancer grants and co-payment programs: $2,076.17

I could have saved thousands of dollars more had I found out about these programs earlier in my treatment….ugh!!

Amount I actually paid out of pocket on my chemo: $2,326.57

So, you can see it is well worth it to apply for cancer grant programs! And saving on your chemotherapy treatment is just one piece of the savings puzzle, you can also save on your radiation treatment out of pocket costs, and on your hospital out of pocket costs!

Worry less and save money on your cancer treatment

When I was diagnosed with breast cancer at age 40 my first and foremost concern was of course for my health and to be able to see my two young daughters Jessica (then 5 yrs) and Emily (then almost 2 yrs) grow up.

My second concern was how much my cancer treatment would cost and how much of a financial hardship it would be for my family. I was (and still am) a stay at home mom, so our family was already on a pretty tight budget.

I spent a lot of sleepless nights worrying about how much my treatment of chemotherapy, surgery, and radiation would cost and how we would pay for it.

I was soon committed to not let my cancer treatment be a financial drain on my family. As you go through cancer treatment you have a lot of nights that you have trouble sleeping either due to the treatment medications you are taking or the worry in your mind and in your heart.

I decided whenever I couldn’t sleep I would research ways to save money on my cancer treatment and apply for anything that I could in order to save as much money as possible on my treatment.

Had I known through my ten months of treatment all that I know now I could have applied for programs earlier and maximized more of my benefits and probably had many fewer sleepless nights worrying about how we would pay for my treatment.

My goal is to help others who are burdened by this horrible disease called cancer. Hopefully the information on Cancerbutterfly.com will ease your mind about the financial side of your treatment, so you can focus on your health.

I wish you much luck with your health and your financial side of cancer.