Do you understand how cancer grants work?

You could be missing out on a lot of financial help if you don’t fully understand how cancer financial grants work.

There are retro rules for each grant, “back door” ways to get approved even if they say the funding is closed for the specific grant you are needing to apply to, and different names for the drugs you may be receiving (grants may be listed under the brand name OR the generic name)  …….

**Chemotherapy and drug co-payment assistance grants have specific time deadlines and depending on the Foundation program may only go retro for 30-180 days (some go a year retro) from your “approved” date, so it is VERY important to apply for these right away. 

Make sure you fully understand how the grants work BEFORE applying for any grants!

Check out our…….

Chemotherapy and Drug Grant Overview Page to understand the entire process

**Join our FREE private Breast Cancer Financial Help and Resources – Cancer Butterfly Facebook Group to ask questions, share info, and get in the info sharing first hand 🙂

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Some cancer grants cover chemo treatments received prior to being approved for the grant!

Several cancer grants actually allow you to use your awarded grant funds to cover chemo treatments and other cancer drugs that you received prior to being approved!

Some cancer grants allow you to use funds to cover treatments received up to 180 days prior to being approved for funding!  So if you were approved for grant funding in say April, you could use your grant funds to cover chemo treatments or other drugs that you received all the way back to November.

All of the cancer grant foundations have different guidelines and rules that they follow as far as the amount of grant funding you receive and their “retro” rules.

Retro – (retroactive) Definition:  to go back in time, how far the grant program will allow you to go back in time to use your benefits on treatments you have already received before you were actually “approved” for a grant award.  Some grant programs will allow you to use your awarded grant benefits on treatments that you already received 30-180 days before you were actually approved for the grant program.

One of the grants that I was awarded was for $2,500.00, and I used $1,054.33 to cover chemo treatments that I received PRIOR to being approved for the grant and PRIOR to even applying to the program!  See our foundation grant list below…

Each foundation will also provide you with a specific end date that you must use your grant benefits by or your benefits will expire and be unusable.  Some foundations will allow you to reapply if you get to your benefit expiration date and you still need co-payment assistance.

If you are approved for a co-payment assistance grant the foundation will let you know your approved date, your grant award dollar amount, time period you have to use your co-payment assistance grant, and how many days you will be allowed to use the grant funds for retro services.

Read our page on Chemotherapy and drug grant overview (to Save you $$$) and after you are clear on how the grant process works go to our Foundation Grant List and start making some phone calls and see if you can put some money back in your pocket 🙂

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Why you should know the generic & brand name of each cancer drug you are taking

The grants are available according to the type of cancer you have (example: breast cancer, colon cancer, thyroid cancer, etc.) and also available according to the type of chemo cancer treatment drugs you are receiving for your treatment.

Each chemo drug usually has a brand name and a generic name.  Once it has been decided which chemo drugs you will receive as part of your treatment, you need to be familiar with both the brand name and generic name for each drug.

Chemotherapy may be given with a curative intent (which almost always involves combinations of chemo drugs), so you may be receiving several different chemo drugs at one time that interact well together to combat the cancer cells.  So make sure you talk to your doctor and get a complete list of ALL the chemo drugs you are receiving so that you can apply for assistance for each drug you are receiving.

Some grant foundations only list drugs by the brand name and some only list them by their generic name in their computer system, so it is really important to use both names when you are calling to apply for co-payment grants.

You can look up the brand name and generic name of drugs at this web site:  www.rxlist.com

As soon as you know the brand name and generic name of each drug you are receiving for treatment, you should apply for a co-payment assistance grant through whichever foundations that you are eligible to apply to based on the drugs you are receiving and the type of cancer you have (example:  breast cancer, colon cancer, thyroid cancer, etc.)  The link to our Foundation grant list is below.

Some foundations only accept a specific number of new applications each month, and some only take new applications during the first few days of each month, so you need to start applying right away, because you may qualify to apply for a certain grant because they are accepting applications for the specific drugs you are receiving and for the specific type of cancer you have (example: breast cancer, colon cancer, thyroid cancer, etc.), however they may tell you that they have already met the limit of applications that they are accepting for those drugs this month, so you would have to wait until the next month.  So that is why you want to start calling on the grants right away and make notes on each grant that you call on so that you can call back if necessary the next month.

The following are the cancer treatment drugs I was given, I also listed my out of pocket co-pay amount that I was billed for each drug for each of my six chemo treatments:

Neulasta Injection:  $346.13 (my co-pay out of pocket amount)

Taxotere (generic name- Docetaxel):  $694.02 (my co-pay out of pocket amount)

Adriamycin (generic name- Doxorubicin):  $8.10 (my co-pay out of pocket amount)

Cytoxan (generic name- cyclophosphamide):  $6.08 (my co-pay out of pocket amount)

Check out our chemotherapy and drug grant overview page to learn more

Also, check out our Foundation grant list page

Click on the compass below to check out our other free resources to help you be more comfortable during your cancer treatment:

The following products helped me during my cancer treatment:

(purchasing through our affiliate links, help support this site 🙂  )

Day one of Chemo

Image result for chemo room

About 9:45 am we headed over to the chemo room and got started.  The nurses started with taking my temperature (which was fine), and my blood pressure (which was elevated, duh!!)…… I don’t know why they bother with that one 🙂

Then they inserted the IV, they found a good vein after only two tries.

They first started me on a saline drip, then started the first drug bag, I didn’t feel a thing.  The next bag was a red solution from their fridge, at the time this bag started going in, my eyes started getting really tired and dry and my contacts got really uncomfortable.  My nose started getting stuffy and I started sneezing a lot.

I called my husband who was out grabbing us lunch and asked him to run home and pick up my glasses so I could take my contacts out.

After the red bag they started another clear bag and soon after my husband returned I was all done!

There were 10 chairs in the chemo room and most of the time that I was there (about 3 hrs total), most of the chairs were full.  Most with women, only two with men the entire time I was there, everyone was quite a bit older than me.  Many women were in their 60’s-80’s.  Very sad, at that point in your life to have to be doing chemo in your retirement, they should be off on a vacation!

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Everyone sits in a big room, very similar to a blood donation room at the blood bank.  It is nice because you are close enough to your neighbors to chat and get some good advice and such.

Some people bring books, chat, nap, listen to music, or do paperwork.  Bring a big water cup and some snacks.

Actress and photographer Kris Carr has documented her journey through several best selling books since finding out her liver was covered with cancerous tumors.  Her cancer tips are candid and informative, yet very warm and real.

She documents her interactions with family, friends, and doctors through her journey.  Kris Carr is a very “say it like it is” kind of gal so she is very easy to relate to, these are my top pick cancer tip books!

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To help ease your burden as you go through cancer treatment we have a lot of resources available to help with out of pocket costs for hospital tests, chemotherapy cost, chemotherapy side effects, and radiation treatment costs.

Click the compass below to check out all the FREE Resources available on CancerButterfly.com to help you through your cancer treatment:

Save money on out of pocket Hospital bill co-pays

As you go through cancer treatment you will accumulate a lot of various individual bills for hospital services.  These services may include lab work, MRI, PET scan, echocardiogram, ultrasounds, X-rays, Mammograms, biopsies, genetic tests, surgery, and any other large test performed at the hospital.

The costs of all these tests can REALLY add up!  Usually your health insurance company will have negotiated the rates on these services with your hospital, but you may still have quite a bit to pay out of pocket on your co-pays.

The amount I owed the hospital for my out of pocket co-pay cost for all my breast cancer related hospital expenses was $1,594.88.  Thankfully, I learned how to apply for a discount on these costs and luckily was able to receive a 54% discount off of that amount, so then I only owed $726.22!

When you also have out of pocket co-pays and deductibles to pay for chemotherapy and radiation treatment, all the out of pocket costs can really start to add up!  So anywhere you can save money helps a lot!  Thankfully, there is financial help for cancer patients!