chemotherapy

Dental tips during chemotherapy

This is a really important subject…. I posted about this subject about a year ago and feel it so important, that I will probably repeat this post every six months or so….

(this info will not only save your teeth, but save you a bundle in major dental work down the road)

Luckily I had a dental cleaning scheduled just before I had my first chemotherapy treatment and my dentist gave me a lot of great advice on how to take care of my gums and teeth during my chemotherapy treatment to treat my breast cancer.

He explained that chemotherapy can be very hard on our gums especially due to many of the chemotherapy drugs causing dry mouth. Dry mouth can lead to a host of dental problems including gum disease if dry mouth is left untreated!

I also found that my teeth and gums became VERY sensitive during chemotherapy treatment and unfortunately this lasted for several months after I completed chemotherapy. Fortunately, there are many things you can do to treat dry mouth, sensitive teeth and gums, and to improve dental health ……..

There are specifics on products I found to be very helpful during my treatment that you can read about by clicking below:

Click here to read more specifics on Dental tips for chemotherapy treatment

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Some cancer grants cover chemo treatments received prior to being approved for the grant!

Several cancer grants actually allow you to use your awarded grant funds to cover chemo treatments and other cancer drugs that you received prior to being approved!

Some cancer grants allow you to use funds to cover treatments received up to 180 days prior to being approved for funding! So if you were approved for grant funding in say April, you could use your grant funds to cover chemo treatments or other drugs that you received all the way back to November.

All of the cancer grant foundations have different guidelines and rules that they follow as far as the amount of grant funding you receive and their “retro” rules.

Retro – (retroactive) Definition: to go back in time, how far the grant program will allow you to go back in time to use your benefits on treatments you have already received before you were actually “approved” for a grant award. Some grant programs will allow you to use your awarded grant benefits on treatments that you already received 30-180 days before you were actually approved for the grant program.

One of the grants that I was awarded was for $2,500.00, and I used $1,054.33 to cover chemo treatments that I received PRIOR to being approved for the grant and PRIOR to even applying to the program! See our foundation grant list below…

Each foundation will also provide you with a specific end date that you must use your grant benefits by or your benefits will expire and be unusable. Some foundations will allow you to reapply if you get to your benefit expiration date and you still need co-payment assistance.

If you are approved for a co-payment assistance grant the foundation will let you know your approved date, your grant award dollar amount, time period you have to use your co-payment assistance grant, and how many days you will be allowed to use the grant funds for retro services.

Read our page on Chemotherapy and drug grant overview (to Save you $$$) and after you are clear on how the grant process works go to our Foundation Grant List and start making some phone calls and see if you can put some money back in your pocket 🙂

Click on the compass below to check out our other free resources to help you be more comfortable during your cancer treatment:

The following products helped me during my cancer treatment:

(purchasing through our affiliate links, help support this site 🙂 )

Neulasta Injection can help you get approved for a cancer grant

The very expensive Neulasta Injection is often given the day after chemotherapy treatment in order to stimulate your bone marrow to make your white blood cells recover more quickly from the effects of the chemo drugs and to help ward off infections.

This injection can cause bone pain in your legs, arms, lower back, and chest. The bone pain should lessen each time you receive the injection. The injection is usually given at least 24 hrs after chemotherapy to stimulate the growth of new, healthy, white blood cells.

If you are receiving the Neulasta Injection you can apply for cancer grants to help offset your out of pocket cost on this drug and possibly on the other cancer drugs you are receiving too! See below for example…

EXAMPLE: Basically let’s say you have breast cancer, but the foundation you called is not accepting any more new breast cancer applications this month, or they are not accepting any more new applications for the specific cancer drugs you are receiving, you can still apply if they are accepting new applications for CIN (chemo induced anemia).

You would qualify to apply as CIN if you are receiving (or did receive) the very expensive neulasta injection.

And, because you got your “foot in the door” with your CIN application with this foundation and if approved through your CIN application, you very well may also be able to get ALL your other cancer related drugs covered (as long as they are on that foundations approved list, even if they are not specifically accepting new applications for those drugs any longer that month, and as long as your health insurance paid a portion of the cost, which left you with a co-payment).

Read our page on Chemotherapy and drug grant overview (Save $$$) for more detailed information on cancer grants and our Foundation grant list page.

Click on the compass below to check out all of our free resources to help you be more comfortable during your cancer treatment:

Day one of Chemo

Image result for chemo room

About 9:45 am we headed over to the chemo room and got started. The nurses started with taking my temperature (which was fine), and my blood pressure (which was elevated, duh!!)…… I don’t know why they bother with that one 🙂

Then they inserted the IV, they found a good vein after only two tries.

They first started me on a saline drip, then started the first drug bag, I didn’t feel a thing. The next bag was a red solution from their fridge, at the time this bag started going in, my eyes started getting really tired and dry and my contacts got really uncomfortable. My nose started getting stuffy and I started sneezing a lot.

I called my husband who was out grabbing us lunch and asked him to run home and pick up my glasses so I could take my contacts out.

After the red bag they started another clear bag and soon after my husband returned I was all done!

There were 10 chairs in the chemo room and most of the time that I was there (about 3 hrs total), most of the chairs were full. Most with women, only two with men the entire time I was there, everyone was quite a bit older than me. Many women were in their 60’s-80’s. Very sad, at that point in your life to have to be doing chemo in your retirement, they should be off on a vacation!

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Everyone sits in a big room, very similar to a blood donation room at the blood bank. It is nice because you are close enough to your neighbors to chat and get some good advice and such.

Some people bring books, chat, nap, listen to music, or do paperwork. Bring a big water cup and some snacks.

Actress and photographer Kris Carr has documented her journey through several best selling books since finding out her liver was covered with cancerous tumors. Her cancer tips are candid and informative, yet very warm and real.

She documents her interactions with family, friends, and doctors through her journey. Kris Carr is a very “say it like it is” kind of gal so she is very easy to relate to, these are my top pick cancer tip books!

(purchasing through our affiliate links, help support this site 🙂 )

To help ease your burden as you go through cancer treatment we have a lot of resources available to help with out of pocket costs for hospital tests, chemotherapy cost, chemotherapy side effects, and radiation treatment costs.

Click the compass below to check out all the FREE Resources available on CancerButterfly.com to help you through your cancer treatment:

Steps leading up to my Breast Cancer diagnosis

Image result for footprints in the sand

I first noticed the lump in my right breast while on vacation over the summer with my family. Once we returned home, I made an appointment with my doctor.

They were certain it was NOT cancer but sent me to get a mammogram just to be sure. The mammogram came back with abnormalities. They did an ultrasound that same day on the breast.

They told me they wanted me to come back for a biopsy the next week, they kept saying they were sure it was not cancer, “I was too young, it didn’t run in my family, I don’t fit the profile, blah, blah, blah…”

I went back the next week and had the biopsy on a Wednesday and by Friday afternoon ten minutes before needing to leave to pick up my daughter at kindergarten my doctor’s office called with the horrible news…… I do indeed have breast cancer.

And let me tell you….. the world stopped….. you hear of people saying the “world just stopped”, and it really did….dead silence, I had to remind myself to breathe…

I was and still am shocked! I had my first baseline mammogram at age 35 and it was fine. I was 40 years old when I was diagnosed with breast cancer. I am now happy to say I am a seven year breast cancer survivor 🙂

Click the compass below to check out all the FREE Resources available on CancerButterfly.com to help you through your cancer treatment:

History of the Butterfly symbol

Butterflies are deep and powerful representations of life. Many cultures associate the butterfly with our souls. The Christian religion sees the butterfly as a symbol of resurrection. Around the world, people view the butterfly as representing endurance, change, hope, and life.

Butterflies symbolize life struggles that people have endured to emerge as a better person.

Imagine your entire physical being changing to such an extreme that you are unrecognizable at the end of the transformation. Keep in mind, this change takes place in a short span of about a month (that’s the length of the butterfly life cycle). This is the deepest symbolic lesson of the butterfly. She asks us to accept the changes in our lives as casually as she does. The butterfly unquestioningly embraces the changes of her environment and her body. This unwavering acceptance of her metamorphosis is also symbolic of FAITH. Here the butterfly requests us to KEEP OUR FAITH as we move toward these changes throughout our lives. She understands that our worrying, frustration, and anger are useless against the constant changes of nature – she asks us to recognize the same.

Christianity believes the butterfly to be a symbol for the soul. We are all on a long journey of the soul through our lives. On this journey we encounter endless curves, swerves, and up-hill roads that cause us to emerge into finer beings. At our soul-journey’s end we are inevitably changed – not at all the same as when we started on our road. Our mission is to make our way in faith, accept the change that comes, and emerge from our transitions as gracefully as the butterfly.

To Native Americans the meaning of the Butterfly symbol signifies transformation. The butterfly is also believed to be a messenger from the spirit world. The message the butterfly brings depends on their color. A black butterfly indicates bad news or illness, yellow brings hope and guidance, brown signifies important news, red signifies an important event and white signifies good luck. A butterfly who lands on your shoulder brings you comfort……..may a butterfly land on your shoulder soon.

As you go through your cancer treatment may you be reminded of the butterfly and may she help bring you peace as she flies past 🙂

To help ease your burden as you go through cancer treatment we have a lot of resources available to help with chemotherapy cost, chemotherapy side effects, and radiation treatment costs. Click the compass below to check out all the FREE Resources available:

Don’t open the oven door with your wig on!

The biggest tip I can give you in the “wig” department is….. “don’t open the oven door with your wig on!” Both of the wigs I purchased were synthetic. I had no idea that synthetic wigs are HEAT SENSITIVE and I was just going about my business pulling dinner out of the oven and then I noticed when I walked past a mirror that my bangs were standing on end! Never to look the same again! The heat from the oven scorched my bangs 🙁 So then, I was on to wig number two.

If you are going through cancer treatment and chemotherapy is part of your medical treatment, losing your hair may be part of the deal as one of the chemotherapy side effects of some of the chemotherapy drugs. Keep in mind it is temporary and the chemotherapy hair loss, eyebrow hair loss and eyelash loss will grow back rather quickly once chemotherapy treatment is complete.

There are two main types of wigs:

Synthetic Hair Wig – generally less expensive than real human hair. You CAN NOT use hot styling tools on a synthetic wig unless it is a heat safe version. There is no styling necessary for synthetic wigs, since they come already styled. When wearing a synthetic wig be very careful to stay away from BBQ grills, ovens, stoves, and fireplaces!

Real Human Hair Wig – generally more expensive than synthetic wigs and has a higher quality texture of hair. This type of wig will allow you to be able to change the hairstyle and use hot styling tools on it.

It is recommended that you wash your wig after wearing it every 8-12 times. Don’t brush your wig when it is wet. The fibers in wigs are fragile and should only be brushed with a wig brush and only when the wig is dry. There is special wig shampoo that you can purchase at any wig shop.

The bangs on wigs are purposely left long so that each person can have them trimmed how they would like, since some people wear their bangs longer than others. After you purchase your wig you can take it to a hairdresser that has experience in cutting wigs and have the bangs trimmed how you would like. I also put hair clips in my wigs to make them look more like how I actually wear my hair.

Save money on out of pocket Hospital bill co-pays

As you go through cancer treatment you will accumulate a lot of various individual bills for hospital services. These services may include lab work, MRI, PET scan, echocardiogram, ultrasounds, X-rays, Mammograms, biopsies, genetic tests, surgery, and any other large test performed at the hospital.

The costs of all these tests can REALLY add up! Usually your health insurance company will have negotiated the rates on these services with your hospital, but you may still have quite a bit to pay out of pocket on your co-pays.

The amount I owed the hospital for my out of pocket co-pay cost for all my breast cancer related hospital expenses was $1,594.88. Thankfully, I learned how to apply for a discount on these costs and luckily was able to receive a 54% discount off of that amount, so then I only owed $726.22!

When you also have out of pocket co-pays and deductibles to pay for chemotherapy and radiation treatment, all the out of pocket costs can really start to add up! So anywhere you can save money helps a lot! Thankfully, there is financial help for cancer patients!

If your “Fairy Godmother” could give you cancer treatment advice

She would say….

“You must let your friends and family help you whenever possible during your treatment. This is the time to take friends and family up on any offers of help!”

If a friend or family member says…..”What can I do to help?”…. You NEED to say “I could use help with…”

Have a list ready of things that you know you could use help with.

Here are a few suggestions of things that others could DO to help you while you go through treatment:

Deliver a meal or two through your meal train
Clean your bathrooms, vacuum & dust, or clean your entire house 🙂
Do your family’s laundry
Mow your lawn or weed flower beds
Water your plants
Pick up your groceries
Babysit your kids so you can take a nap
Wash your car

If things are in order around your home, you will feel less stressed and be more at peace which will greatly help you through your treatment.

The further along you go into treatment the more tired you will be and the less energy you will have, so it is really a good idea to let people start helping you right away because if you wait until you really need it you may be way too tired to even try to schedule the help you need at that point. Better to get in a good schedule of receiving help from the beginning of treatment so that friends and family can slowly work helping you into their own personal schedules too so it is easier on everyone.

Bottom line is…..your friends and family will want to help you and you NEED to let them help. It is good for all involved because you need the help and it will let them give you the gift of helping and give them something to do that will really help you.

Cancer Butterfly has a lot of FREE Resources available to help you get through cancer treatment more comfortably.

How to save money on chemotherapy treatment

Chemotherapy treatment can be VERY expensive depending on what type of insurance you have and how much your health insurance is contracted to cover of your chemotherapy treatment.

Chemotherapy grants and drug co-pay programs can help! Chemotherapy grants and drug co-payment programs have specific time deadlines and depending on the program may only go retro for 30-360 days from your “approved” date, so it is VERY important to apply for these right away.

The co-payment programs are available according to the type of cancer you have (example: breast cancer, colon cancer, thyroid cancer, etc.) and are also available according to the type of chemotherapy cancer treatment drugs you are receiving for your treatment.

The following are all drugs I received as part of my breast cancer treatment: Evista (hormone blocker), Emend (very expensive anti-nausea drug), Anzemet (chemo drug), Adriamycin (chemo drug), Cytoxan (chemo drug), Taxotere (very expensive chemo drug), Neulasta Injection (to ward off infection, very expensive!).

Actual cost for above chemo/drug expenses: $42,690.19

Contracted amount my insurance paid: $3,489.70

My “out of pocket” cost: $4,402.74

Amount I saved on my “out of pocket” cost by applying for cancer grants and co-payment programs: $2,076.17

I could have saved thousands of dollars more had I found out about these programs earlier in my treatment….ugh!!

Amount I actually paid out of pocket on my chemo: $2,326.57

So, you can see it is well worth it to apply for cancer grant programs! And saving on your chemotherapy treatment is just one piece of the savings puzzle, you can also save on your radiation treatment out of pocket costs, and on your hospital out of pocket costs!